Grateful… or maybe misinformed???

Sometimes I think we come a long way with SCD, from where we were decades ago. Sometimes I wonder if we are to be grateful for that or if we have been misinformed the entire time. Confusing right?

When I was growing up, they used to put an age limit on my life, it started when I was 9, I wasn’t supposed to live past 9, then it was 18. I’m well in my 30s now, closer to 40 than 30, and I’m still alive. For that I am grateful but I still wonder.

One of my IG friends and fellow Warrior just celebrated her birthday, happy birthday again Jamila, and it got me thinking. It seems like growing up in the Caribbean was always more difficult with SCD than being in the USA; a lot of my fellow Sickle Cellers have said that if they stayed back home, they’d be dead by now; I think that it’s misinformation at its finest.

A few Sickle Cellers were not able to blossom into the best version of themselves because of that same claim. To them, it’s been like what’s the point of doing anything when I’m not going to live past a certain age. In my opinion, they’ve been cheated out of a future because of misinformation.

I have yet to find any scientific evidence to support that “ridiculous” claim but it’s always somewhere in the back of my mind.

I’m grateful that I was able to live the life that I did, however painful and challenging but I’m also very uneasy with the idea that some Warriors grew up with an “expiration date” and that stopped them from being the best version of themselves.

I’m praying that nowhere in the world, in 2018, there are Warriors living with that feeling. If there are, I’ll be working hard to change that.

Smile, it could be worse!!!

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